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Forums / Re-designing and upgrading the Online Forums / How can we improve the forums? Your suggestions and comments please

Topic: How can we improve the forums? Your suggestions and comments please

  1. blondguy
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    11397 posts
    16 April 2022 in reply to That Other Guy

    Hi That Other Guy!

    Thankyou for helping out with your input

    Sending email notifications isnt in the budget unfortunately as Beyond Blue is a non profit organization. It has been mentioned many times over the years. It is still a matter of physically checking/refreshing to view your replies

    Cheers

    Paul (Volunteer)

    2 people found this helpful
  2. mmMekitty
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    19 May 2022 in reply to blondguy

    I know & appreciate we are going to have an upgrade soon...however, recently, it has come to my attention how few of us have any knowledge of this marvellous 'smart' technology we use... so, in some future update, or even in between, 😺 can we have something like a IT Support Forum - complete with an expert to help us when some difficulty with the basic technology we use or when something 'weird' happens while using the website?

    & I also came across a Thread, from The Other Guy, asking, "So I notice there are no specific forums for neuro diverse people? Where are my aspies at? I feel like it would be great to talk about the struggles with being non neurotypical in a dedicated forum?"

    I think that is a very reasonable request & would be a good idea for the forum.

    & the other night, when I discovered this site was down for maintenence, firstly - can we hav some warning this will happen, say, a banner message at the top of the page for a few days prior to the 'outage', saying from when to when the site will be unavailable. The message I saw on my screen didn't say when the site would be available again. I found that annoying, but imagine some people might feel very upset about it, especially when it's late at night, & the emotions may be high already.

    Thanks again.

    mmMekitty

    2 people found this helpful
  3. robthomaslover
    robthomaslover avatar
    335 posts
    19 May 2022
    i think it would be good if we could be notified by email or something (& opt out if we wish) when the site is undergoing maintenance. or if the site does have maintenance, i think the webchat support should still be available, even if the forums aren't. some people may feel comfortable just using BB web chat or forums, such as the fact that someone pretty much talks to you straight away on the webchat rather than waiting hours. they may prefer BB webchat over other helplines, i don't know. it's frustrating randomly coming on here to see it undergoing maintenance randomly for hours. i can understand when you will be making the new changes because this has already been posted. i understand things may glitch etc & you need to fix them, but just a suggestion.
  4. mmMekitty
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    19 May 2022 in reply to mmMekitty

    Please note, the Thread I fround was from 'That Other Guy', not 'The...'. I'm sorry for this error.

    mmMekitty

  5. blondguy
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    19 May 2022 in reply to mmMekitty

    Hey mmMekitty

    You have mentioned a good point about forum maintenance notifications as the bulk of members dont see the the message that Beyond Blue post as they 'presume' all the members see it when of course they dont

    Its only my humble opinion that the forum maintenance notification is somewhat generic and doesnt take peoples mental health into account..yet.... Beyond Blue probably dont have the ability (budget) to send a blanket email to all members either. I dont know....probably as there is a lack of transparency as well...maybe?

    What are 'neuro diverse people'? I dont know what that means mmMekitty....I must be getting old!

    I hope you have doing as well as possible kitty :-)

    Paul

    1 person found this helpful
  6. geoff
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    19 May 2022 in reply to mmMekitty

    Hello mmMekitty, completely agree with you because problems do arise as I mentioned in the cafe, hich actually didn't happen while replying, but unfortunately have once again happened

    mmMekitty said:

    I know & appreciate we are going to have an upgrade soon...however, recently, it has come to my attention how few of us have any knowledge of this marvellous 'smart' technology we use... so, in some future update, or even in between, 😺 can we have something like a IT Support Forum - complete with an expert to help us when some difficulty with the basic technology we use or when something 'weird' happens while using the website?

    & I also came across a Thread, from The Other Guy, asking, "So I notice there are no specific forums for neuro diverse people? Where are my aspies at? I feel like it would be great to talk about the struggles with being non neurotypical in a dedicated forum?"

    I think that is a very reasonable request & would be a good idea for the forum.

    & the other night, when I discovered this site was down for maintenence, firstly - can we hav some warning this will happen, say, a banner message at the top of the page for a few days prior to the 'outage', saying from when to when the site will be unavailable. The message I saw on my screen didn't say when the site would be available again. I found that annoying, but imagine some people might feel very upset about it, especially when it's late at night, & the emotions may be high already.

    Thanks again.

    mmMekitty

    Take care.

    Geoff.

  7. blondguy
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    19 May 2022 in reply to robthomaslover

    Hey robthomaslover....Geoff...mmMekitty

    you are spot on when you mentioned ' i think it would be good if we could be notified by email or something' You and I were posting at the same time :-)

    I dont know if it helps...I mentioned above "Beyond Blue probably dont have the ability (budget) to send a blanket email to all members"...Anyhow...if you want to have look its in my post above to mmMeKitty

    Its always great to see you on the forums robthomaslover :-)

    Nice1

    Paul

    2 people found this helpful
  8. mmMekitty
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    19 May 2022 in reply to blondguy

    Hi Paul,& everyone,

    Good to see That Other Guy is already educating someone! I'll try a simple explanation.

    Neuro-diverse people are people primarily are people on the autism spectrum, which includes people with Asperger's Syndrome. These are are a very diverse group of people, themselves. Neurodiverse refers to how people think atypically, have, perhaps, a disconnect with the world, like it doesn't quite fit... maybe... I find it hard to explain.

    I know this is an insufficient description, by no means complete. There's lots of info online, so may I suggest some google research.

    Indeed I think the line between neurodiverse & neurotypical is becoming blurred all over the spectrum! My own quick search & I wonder if I'm neurodiverse, & not diagnosed with any condition like ADHD or Asperger's Syndrome. The term seems to include more people than I thought, as well.

    I've met a few people who are, & they are all different in their own ways.The neurodiverse are as diverse as the neurotypical are all different individuals, too.

    There are still far more neurotypical people than neurodiverse people.

    I hope that Forum for Neurodiverse People is built soon!

    mmMekitty

    1 person found this helpful
  9. Matchy69
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    20 May 2022 in reply to mmMekitty
    I have Autism and so do two of my children and have a thread dealing with this and have seen other threads dealing with Autism.
  10. mmMekitty
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    20 May 2022 in reply to Matchy69

    Hello Matchy 😺I'm happy to see you again.

    Would you be interested in having a section for our Neuro-diverse members?

    (my spell checker prefers 'Neuro-diverse' with a hyphen.)

    mmMekitty

  11. quirkywords
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    quirkywords avatar
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    20 May 2022 in reply to mmMekitty

    mmMekitty

    thanks for your explanation.

    I have read that as well as autism, ADHD and dyslexia term Aldo refers to other types.

    Other Types
    Other types of neurodivergence include Tourette's, dyspraxia, synesthesia, dyscalculia, Down syndrome, epilepsy, and chronic mental health illnesses such as bipolar disorder, obsessive-compulsive disorder, borderline personality disorder, anxiety, and depression.

  12. mmMekitty
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    20 May 2022 in reply to quirkywords

    Yeah, Quirky, that's what I saw in my quick search. I hadn't realised so many other conditions are now considered Neuro-diverse. So, looks like I am TOO! & so is nearly everyone on these forums???!

    Now I would really liketo do more research... damn, I wish I wasn't getting so tired & my legs would not hurt so much, so I could sit & really go down a long & winding rabbit hole!

    mmMekitty😺

  13. Blue's Clues
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    2299 posts
    21 May 2022 in reply to mmMekitty

    Hi all,

    Good to see neurodivergence getting some attention again. As some have said here, autism and ADHD are perhaps the best known neurodiversities, and dyslexia wears that hat, too. I suggested a neurodiverse section myself some while back and there were a number of people at the time that also wanted to see something more specifically for us - it's definitely wanted in the community and very necessary for some of us.

    As someone with ADHD, I find it really frustrating that I have no sense of community with what I'm dealing with; I've consistently failed to find a comfortable, safe space to talk about life with this condition among others dealing with the same things - and believe me, I've tried hard to find one. It is disheartening, and I'm certain I am not the only one having this struggle.

    Just gonna repeat Quirky's helpful input here about neurodivergence in general:

    "Other types of neurodivergence include Tourette's, dyspraxia, synesthesia, dyscalculia, Down syndrome, epilepsy, and chronic mental health illnesses such as bipolar disorder, obsessive-compulsive disorder, borderline personality disorder, anxiety, and depression."

    There are a couple on the list I would want to research to double check, most particularly depression and anxiety as I believe they come up in neurotypical people also, but for the most part I know these to be accurate from my own prior research. Going to also quote mmMekitty here, as I think your words are relevant:

    "Neurodiverse refers to how people think atypically, have, perhaps, a disconnect with the world, like it doesn't quite fit... maybe..."

    Whilst I understand "neurodiverse" to be a term referring to us being literally neurologically different to the majority of people, this description says a lot about the lived experience of those of us with that particular label. I can't speak for everyone, but that's absolutely how I feel and something echoed by other neurodiverse people I know. We don't fit, or feel like we fit. There is also something called "rejection sensitive dysphoria" (a disproportionate sense of rejection where it is seen or perceived in social situations) which affects a lot of neurodiverse people, no doubt heightened by literally being in a society that doesn't make space for us and in some cases kinda vilifies us for being how we are. So yeah, neurodiverse section please, BB! We'd like to be included.

    Blue.

    2 people found this helpful
  14. mmMekitty
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    21 May 2022 in reply to Blue's Clues

    Thank you, Blue's Clues, I wasn't sure I had that right, but I've heard it from a couple I know. He has Asperger's Syndrome, & she has dyslexia (& writes poems & stories).

    For me, I've always felt myself to be an outsider. As I grew, kids around seemed to confirm my feelings by excluding me & pushing me away. But I didn't always have problems with anxiety or depression; that came later, as did the PTSD & some social phobia. I have environmental causes for my mental health conditions.

    I think that might be an important difference to note. Someone who has had anxiety or depression since a very young age, & for no environmental cause, like problems in the family, or people from outside, some traumatic incident or something - & maybe here, I also had my father taking us away from my mother, never to see her again, when I was four. That may have caused me to be a more withdrawn & nervous child.

    Would these things happening in childhood cause neurological changes that would change how the child thinks & percieves the world forever?

    (I do apologise - this has been off-topic for this Thread.)

    *

    I haven't come across other threads before seeing The Other Guy's 'Autism' Thread. So please, if there is a category where these threads can be more easily found, would make The Other Guy's request, & Blue's Clues suggestion previously, an important idea.

    Warmly.

    mmMekitty

    1 person found this helpful
  15. romantic_thi3f
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    romantic_thi3f avatar
    3183 posts
    3 June 2022

    Hi all,

    Hopefully I can provide a tiny bit of insight here and the ProjectTeam or other champions/members can jump in.

    • We are really conscious of the fact it might be hard to navigate the forums even though our aim is to make it as easy as possible. We are going to have a FAQ thread like we do now that will cover lots of common questions as well as help navigating the forums.
    • We can potentially create a seperate IT thread FAQ as well, but anything you're unsure of or need help with anything you can email Beyond Blue directly through their platform and they can help you out.
    • Whenever the website is down, the webchat should be available. If it's not, try our Beyond Blue phone line, or Lifeline (text, online chat or call). It's hard having the site go down for maintenance so BB always want to make it as short as we can to get things back up and running.
    • There are lots of things on wishlists! Please know that if something hasn't been implemented it doesn't mean we haven't heard you. Our platform is changing but has more potential to change in the future. We don't have a neurodiverse section (the sections will be the same), but we're always open to having these sections in the future and trying to accommodate everyone in the forums.
    • Our new platform will have email notifications! You can turn these off if you want to.

    rt

    4 people found this helpful
  16. Myfanais
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    2 posts
    4 June 2022 in reply to mmMekitty

    Hi mmMekitty,

    I am replying to your question about childhood experiences causing “neurological changes…forever” and have been reading about this very topic in a book called “The body keeps the score” by Bessel Van Der Kolk. It starts talking about PTSD in war veterans but moves quickly into childhood trauma. I think you might find it helpful in explaining how early childhood experiences affect mental health and also different treatment options (not limited to medication only).

    In my opinion, yes, I do think it can shape a person’s brain chemistry and no, I don’t think it has to be forever.

    With best intentions, Myfanais

  17. mmMekitty
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    4 June 2022 in reply to Myfanais

    Hello Myfanais, & a warm welcome to you.😺

    Thank you for your response. I think I have heard of the book... but I'm not sure if I knew anything about it, except the name sounds familiar. I will see if I can find it online,(audio), & take a look.

    Hope I see you around the forums where we might chat more.

    mmMekitty

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