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Forums / Staying well / For those of you who have stopped working because of your illnesses...

Topic: For those of you who have stopped working because of your illnesses...

17 posts, 0 answered
  1. Brooke89
    Brooke89 avatar
    3 posts
    7 January 2015
    How do you spend your days? Do you have a pattern of peaks/troughs each day? Do you struggle to leave the house? I have been off work close to a year now and am interested to from people in a similar situation. Thank you :)
  2. white knight
    Community Champion
    • Outstanding members who have volunteered their time to support others here on the forums
    • Life membership is awarded by beyondblue for providing outstanding peer support to the online community over a period of 3+ years.
    white knight avatar
    9755 posts
    7 January 2015 in reply to Brooke89

    Hi Brooke,  welcome

    Yes, August 2013 I went to work in my own business and knew it would be my last day. An overwhelming feeling of knowing my career was at an end.

    My wife and I both have depression and I have bipolar 2 and dysthymia and anxiety I conquered a while back.

    I'm lucky, I have hobbies and am a bit of a handyman. I love my motorcycle and we go camping every few weeks, seek out the free camping spots etc.

    Sleep is important so we decided I'd sleep and wake up naturally when I wake up. A CPAP machine ensure my sleep apnea doesnt effect me now. Sound sleep is good.

    Early last year I found this forum and have been on it ever since. My life experiences is pretty vast so I spend time here where us birds of a feather flock together lol. We live in a rural area which I highly recommend for those city dwellers that need calm and cant tolerate stress. I've taken up gardening. Home grown vegies and planting flowers around our dam. Cooking, collected mulberries form the land next door and made jam. BBQ's, home made sausage rolls are my specialty. We walk our fox terrier daily but not far as I have DVT in both legs.

    I stay clear of activities that have too many people around like golf clubs and the fire brigade...been there done that. Now I manage better emotionally when there are less people conversing with. So Facebook was tossed out of my life 6 months ago and it has proved a very good move.

    Years ago I built and flew model aircraft. I could return to that but isnt a cheap hobby. My wife makes quilts and meets with a sewing group and attends a gym once a week.

    Hope that helps.

     

    Tony  WK

     

  3. gibby3794
    gibby3794 avatar
    72 posts
    10 January 2015 in reply to Brooke89
    My days all pretty much consist of getting up having coffee and smoke etc, then cleaning the house, by that time its about 11 or 12, then i watch some tv (crims shows two broke girls dr phil etc) then at about 3 my friends sister gets home so i make her a hot chocolate and food if shes hungry, then watch a couple more shows and when my friend gets home from work we go down have a coffee then have dinner go to the gym for about an hour when we get home i either watch more tv then go to bed or just go straight to bed 
  4. Zoomah
    Zoomah avatar
    23 posts
    10 January 2015

    I get up and walk the dog. I take my camera and do some wildlife photography. I live on the outskirts of Perth so it's a nice bush walk. (Rural areas is actually where my depression become huge... no medical or family support 10 hours from Perth)

    Afterwards, I play with my niece who my brother brings over... if I'm feeling all right. If not, I just chill as I don't want to get grumpy at her just because of my depression. 

    I was starting my own business, which took up a lot of my time and energy, but I've reached the point where it's ready to go. I can't start until I'm at a point where I know I won't need inpatient care. So now I have a lot of emptiness in my day, which isn't a good thing. I'm trying to go out to places, do some writing and drawing and other things but the afternoon is very unproductive.

  5. pax vobiscum
    blueVoices member
    • A member of beyondblue's blueVoices community
    pax vobiscum avatar
    2 posts
    14 January 2015
    I have overcome an anxiety disorder (agoraphobia) and manage long-term depression (mostly endogenous).

    I spend my days catching up with study, housework and volunteering.
    I find volunteering both very rewarding and challenging (e.g. helping out with early literacy at school and community visiting at the local nursing homes).

     Through experience and understanding my personality and my illness -  I make sure I give my body and mind rest so that I can function well. I have a mostly introverted personality so I gain energy form being alone. I do enjoy being around others but it takes more energy for me to function. So I make sure after doing community volunteering I give myself some time to rest and re-cooperate.

    It has been a long and arduous road managing my illness - full of bumps, dips and seemingly bottomless hopeless pits. For me, the journey so far has been worthwhile. I've lost much, but gained more through learning and understanding my mental illness.

    My goal is to join the paid workforce again. ATM I'm taking one step at a time to achieve this.  
  6. Sanitarium
    Sanitarium avatar
    1 posts
    14 January 2015
    I wake up make a coffee and have a smoke,watch some news and have another smoke.Once ive smoked ten smokes and had about five coffee's I go to bed by now its 10.30 am I lay in bed wishing I had a life and try to sleep for a few hrs.I usually wake at 1pm maybe have lunch mostly not,drink more coffee and this continues until about 10pm when I go back to bed. 11pm is smoke time because I cant sleep,watch some news or what ever is on,2am ish I go back to bed and try sleep.come 6am Im back up and doing the same thing day in day out.
  7. Brooke89
    Brooke89 avatar
    3 posts
    19 January 2015

    Thank you everyone for your replies :) I feel like I can relate to you all in one way or another.

    Since going on leave from work close to a year ago, I feel like my biggest struggle is managing my anxiety and depression. When I am feeling overwhelmed with my situation (which is 90% of the time) I sleep, A LOT. I don't know how to manage the stress and anxiety I feel. I have attended 10 psychologist sessions but can honestly say I don't think they helped one bit.

    Also, the antidepressants I am taking are not working, but my GP says I need to give them a few months in order to give them a good shot. I've already been on them for 3+ months and don't think they are helping at all.

  8. Randy J
    Randy J avatar
    1 posts
    22 March 2015 in reply to white knight

    Hi Tony,

    I had to sign up to reply to your post. 

    As you have DVT and also anxiety etc it might be that you have a defective gene called MTHFR. I have just found out that I have MTHFR.

    I too have sleep apnea, and I have had a few surgeries to help with that which have helped but have not been a cure.
    So for me, it has been great to hopefully find an answer to why I am not feeling 100%.

    With MTHFR you can not process synthetic folic acid which is put into all commercial breads, flours and a lot of breakfast cereals. (mandated by the Government since 2009)
    The answer for MTHFR is to eat more leafy greens, and possible take an active for of methyl folate which your body can use. 
    There is a heap of info online about this, and it might be worth getting a test. A GP can refer you and it will cost about $60 and 10 days or so to get the results.

    Also, I am surprised that there is no mention of sleep apnea and/or MTHFR on this site as a cause of depression.

    Cheers

    Randy

     

  9. white knight
    Community Champion
    • Outstanding members who have volunteered their time to support others here on the forums
    • Life membership is awarded by beyondblue for providing outstanding peer support to the online community over a period of 3+ years.
    white knight avatar
    9755 posts
    22 March 2015 in reply to Randy J

    Hi Randy

    Very interesting and I'll chase that up. Thanks for going out of your way.

    Tony WK

  10. pax vobiscum
    blueVoices member
    • A member of beyondblue's blueVoices community
    pax vobiscum avatar
    2 posts
    23 May 2015 in reply to Brooke89
    How are you going now, Brooke?
  11. Carmen Lisa
    Carmen Lisa  avatar
    39 posts
    14 June 2015
    I'm still managing to get to work. I dread going to work. It is so exhausting and I feel like I have to pretend that I am okay. But then on my way home, I dread being home alone. I dread days off. Too tired to do anything that might help my mood. Too hard to talk to anyone. I have to keep getting to work or I know that I'll keep getting worse and worse and things will be harder and harder. 
    1 person found this helpful
  12. Lu
    Lu avatar
    1 posts
    18 June 2015

    Hi all, I too struggle with depression and holding down/finding a job. I haven't had a permanent jobs for years now, have ruined opportunities because I can't manage them, and am now stuck in limbo. I went back to study last year and I should have completed work experience by now to head towards my new 'career'. I just can't manage to do it, and haven't done anything all year.

    I spend my days sleeping, overeating, watching tv or running errands. I feel disgusting and am awake all night. 

    Each night I think 'I can do it tomorrow', and plan something productive or good for me. But when I wake, I just think how better it was being asleep, and everything goes out the window. 

  13. NewGirl01
    NewGirl01 avatar
    3 posts
    2 July 2015 in reply to Carmen Lisa

    Hi Carmen Lisa,

    Like you,I am still managing to drag myself to work,although im now part time instead of full time,as i just can't be at work all the time anymore. I stress myself into a frenzy the day before i work and on my way to work,and if i get called in unexpectedly,i nearly throw up. But i find the structure of work is helpful (despite having to fake that im okay while im there,which totally drains me),and having gone part time,ive had the time to find an online course i can do to see if i can manage online tertiary study. If i do okay in that course,i'll consider doing a degree. Having goals makes me feel a little bit more hopeful. Even the little goals are a helpful thing.

  14. romantic_thi3f
    Community Champion
    • Outstanding members who have volunteered their time to support others here on the forums
    • Life membership is awarded by beyondblue for providing outstanding peer support to the online community over a period of 3+ years.
    • A member of beyondblue's blueVoices community
    romantic_thi3f avatar
    3151 posts
    22 July 2015 in reply to Brooke89

    Hi Brooke89,

    Great question by the way - I struggle with this on and off as I've been out of work for a few years.

    When I stopped working I always intended to start working again so I've got myself in a little bit of a routine so I don't get too out of whack.  It also helps me stay as well as possible as I tend to get a bit more depressed when I do less during the day.

    I make sure that I have a good sleep routine and I spend the morning on the computer; either studying or volunteering.  In the afternoons I usually get some exercise, read a bit, try and get out of the house (walk to Coles or go to an appointment), listen to podcasts/music and do a bit of cleaning.  I also try and connect with a few people through LinkedIn, Twitter and Facebook so that I don't feel as isolated.

    Hope that helps :) 

  15. lozb12
    lozb12 avatar
    3 posts
    18 October 2015 in reply to Sanitarium
    Your post sounds exactly like my day , everyday for the last 2 years. It's a hole now that I don't know how to get out of. Being isolated and unhealthy definitely doesn't help me but I don't want to or know how to function now. Least I know I'm not the only one 
    1 person found this helpful
  16. lozb12
    lozb12 avatar
    3 posts
    18 October 2015 in reply to Lu
    I feel like what you posted is me to a tee. Sux so much hey 
  17. MisterM
    MisterM avatar
    475 posts
    20 October 2015 in reply to lozb12
    Well I was fired but my mood isn't the best to get me motivated to apply for jobs, I don't even know what to apply for. Anyways, it's quite sad, I wake up 9-10am, spend a while on my phone on facebook, then I eat, then I turn my pc on around 11am and sit on the pc for most of the day and night. Nothing else to do. If I can be motivated I will read a book or play guitar and try write songs. I barely go outside unless I need to, like to the supermarket.

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