Firstly I just wanted to mention that posts doen't always appear straight away here and can potentially take up to 12hrs so unfortunately there will always be a delay in getting replies. While discussion of moderation decisions on the forums is against the community rules, you can familiarise yourself with the moderation process here:
When I first started posting here I felt completely abandoned too when there were no replies.
However I actually wanted to respond to your post about autoimmune diseases. I have 2 of these. One is managed with a tablet & I don’t get too many side effects from the condition apart from fatigue. But my other condition is type 1 diabetes & that is just relentless with the management. I do finger prick blood tests about 10 times a day, I’m constantly assessing what to eat & calculating the carbs of everything that goes in my mouth so I dose the insulin correctly. If I want to exercise I need to adjust insulin dosages or foods eaten, if I’m not hungry, I make more adjustments.. I’ve had this disease for 35 years & every day is the same micro management of my life. There are no breaks for it, ever.
So I can 100% understand how overwhelming it is. The mental strain, emotional toll, distress, burn out & the dream to just give it all up for one day of freedom ie not managing a life threatening disease.
Im sorry our friends can’t relate. I’ve discovered unless you find someone with the same condition, no one really understands at all.
I’m currently seeing a psychologist who specialises in diabetes & chronic illness & this has really made a difference support wise for me. It could be something you may want to consider?
Otherwise you can look for support groups online, or maybe there’s a social group for people with the same condition as you, either meeting in person or just a Facebook group.
Otherwise, just post here. I’m not online every day, but I pass through once a week & will always be happy to respond when I am around.
Take care of yourself, & don’t be too critical of yourself. We can’t be perfect all the time. So it’s ok to need time out, or relax your care regime if possible for a few hours or days.
I just want you to know that we are out here & we do hear you. I would love to hear back from you if you feel up to it