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Forums / Treatments, health professionals and therapies / How do you manage your CFS? (Chronic fatigue syndrome)

Topic: How do you manage your CFS? (Chronic fatigue syndrome)

3 posts, 0 answered
  1. sjos
    blueVoices member
    • A member of beyondblue's blueVoices community
    sjos avatar
    3 posts
    21 May 2021

    I am very new still to the diagnosis of ME/CFS (Chronic Fatigue Syndrome)

    I suffer with cyclothymia - however the beginning of last year I had gotten EBV (a virus) and later diagnosed with CFS (chronic fatigue) I spent most of last year in bed / confined to my house. When given this diagnosis, my Psychiatrist was looking on 'Google' for treatment/management. I wasn't too confident with that and really have had to do my own research.

    I'm wondering, if you are a fellow CFS soul - what works/has worked? how do you manage now? who do you think is worth a visit?

    Naturopath that specialises in CFS? How do you 'exercise' and 'eat well' when relapsed? I have so many unanswered questions!

    Thank you kindly

    sjos

  2. Coach Craig
    Health professional
    • Health professional
    Coach Craig avatar
    10 posts
    27 May 2021 in reply to sjos

    Welcome to the forum SJOS,

    CFS is indeed a stressful thing to experience with the lack of energy and motivation and feeling fatigued all the time. You were seeking some support for this condition. I have attached a link to "Emerge Australia", https://www.emerge.org.au/.

    They have some amazing supports available for those with a lived experience of ME/CFS, they have a telehealth nurse service, and information and support.

    Just be kind to yourself, rest ensure you implement a good self care program.

    Reach out of you need

    Coach Craig

  3. Aunt Jobiska
    Aunt Jobiska avatar
    32 posts
    20 July 2021 in reply to sjos
    Bridges and Pathways in SA has many online resources for people with CFS, although I think their focus is people in South Australia. I volunteered for them and there certainly are strategies that help people manage their symptoms. A chronic disease management plan with your GP might be a place to start. Eleanor Stein also has good resources - this might be somewhere to start if you have a professional background. Good luck.

     

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