This sort of event (having an illness and people not responding) is all too familiar here. ?Yet if you broke your leg and every time they saw you on crutches they would be distraught.
The existence of this forum is proof that birds of a feather flock together. This is where you can obtain support and understanding. Same with, groups that all have a terminal illness can set aside time to chat together. It's even worse nowadays as people are always busy.
So rather than pressurise loved ones I suggest you seek out groups and therapy so you can talk to your hearts content.
I'm sorry for your challenges that lie ahead, your handcuffed really in what you can do so my only advice is to seek out some motivation lectures and online youtube channels for inspiration. For example these might help.