Online forums

Before you can post or reply in these forums, please complete your profile

Complete your profile

Before you can post or reply in these forums, please join our online community.

Forum membership is open to anyone residing in Australia.

Join the online community Community rules Coping during the Coronavirus outbreak

Forums / Young people / Fibro

Topic: Fibro

2 posts, 0 answered
  1. aly2002
    aly2002 avatar
    1 posts
    20 June 2020

    Im 19

    I have Tourettes, anxiety and depression. After 6+ years of sickness and pain I have finally been diagnosed with fibromyalgia. now every problem I have all makes sense and it makes me so happy that they found something, everyone who said the pain is in my head is now proven wrong, but at the same time im sad. im 19, I have no energy, im tired, im sore everywhere among so much else

    this isn't usually diagnosed until average age 45, It developed young and only 3-6% of the world have it

    I don't feel so trapped anymore as for ages it was an ongoing circle of all pain and sick and no results (fibro doesn't show on any test) and now I know, but I feel kinda more alone and still stuck for an answer as to what I can do. im working with a team to help manage my symptoms but it'll never be cured, there is no cure and every day will bring some degree of pain. My partner is lovely and mum is helpful, but they just don't all understand. on the outside I look happy to them as I found something, but in reality im scared because I know what can happen and know I will never have it quite as easy as others, I get told just not to think about it but obviously its not just that easy

    I don't know, I just feel stuck but in a different way

  2. Lola Lou
    Lola Lou avatar
    6 posts
    21 June 2020 in reply to aly2002

    Hi Aly2002

    I am really sorry to hear you have been diagnosed with fibromyalgia, that would be very difficult to live with. I knew a person with a similar issue. And what they did was they started an online store as they could not have a proper job. They were able to go at there own pace and do what they could in there time. It helped with the feeling of being stuck.

    Would it help if you joined a group with people who experience the same issue? As they would understand.

    I hope your okay x

Stay in touch with us

Sign up below for regular emails filled with information, advice and support for you or your loved ones.

Sign me up