I am undiagnosed CFS, but have clear symptoms. Mostly related to cancer surgery of stomach, chemo and later diet issues with gluten, lactose, sugar and other things.
Have improved my situation a lot, lost some weight, gained a good understanding of diet etc. Still wake up tired, go to sleep tired.
Just left another (of many) jobs due to this condition. Am broke, and have been mostly for past 20 odd years - being chronically tired is not good for working in most jobs, as the readers would know already.
I look hard for options, possible solutions to working while having this terrible illness, in 21 years never found one that really fits. Working is the only thing that will fix my financial situation, and is the one thing I cant really do. It sucks.
I have not obtained any treatment for this, as I know there isn't one worth looking at, other than the lifestyle changes I have already made. I am very reluctant seeing any so called specialists, as from my very extensive contact with medical people, they will get paid no matter what advice they provide.
CFS is my main driver for some depression I fight off from time to time. Life has been a real struggle, with small glimmers of hope here and there. They are the things I try to remember - birth of my kids etc.
Still searching for a solution......