Hello Elizabeth,
Thank you for joining this very important topic and raising such an important issue.
I remember being hospitalised some time ago and being in isolation with very high temperature. Even though I am an English speaker (with a strong accent), being with 39+ fever for over three days and first time in hospital I was confused, scared, lonely, didn't know some of the terminology used by medical staff, had different nurses and doctors coming in my room at various times conducting tests etc and it was a very daunting experience overall.
It was only the day after they had conducted a lumbar puncture (which I hadn't had a clue what it meant at the time, and during which the doctor had answered her mobile and was chatting which had brought up severe anxiety and fear/panic in me), that I saw the consent form left on the chair next to my bed (unfilled and unsigned).
I remember also not having eaten for two days as the staff would leave the menu form outside my door fearing that I'm infectious, but I was unable to get out of bed and didn't know that they would leave it there. On the third day as I started recovering with all the drips and antibiotics I told a nurse that I was starving and feeling very weak. She couldn't believe that I hadn't eaten for so long! So they brought the menu order form in my room and left it on my bed by my feet, with no pen or pencil for me to tick what I wanted to eat! This, together with a few other 'traumatic' experiences took place while I was hospitalised in an inner city major hospital.
This whole experience made me think of elderly people or newly-arrived migrants or others more frail than me who perhaps can't even speak or understand English and have had bad experiences from hospitals overseas or here and how terrible this must be for them, especially when so sick.
Someone told me months later that this was a good case for a lawsuit, however I wasn't aware of my rights as a patient at the time the ambulance took me to hospital, and that is a whole other issue, particularly pertinent to culturally and linguistically diverse patients.